A lot has changed in the 2+ years since I had my Newton SCS implant and to be honest I could write endless pages on how life is different but a picture speaks a thousand words! Anyway - my pain is under control after 10 + years. I take no regular pain medication and came… Continue reading Wow…. 2 years on!
Hi guys - just wanted to check in at the 8 month mark! Sorry for being so quiet but In all honesty I've got so used to normal life and the changes my SCS has had that I haven't got a lot to say.... It. Still. Works! Yesterday was a prime example, I popped to… Continue reading Month 8 – Harry Potter & the Spinal Cord Stimulator
Hi guys - just a quick update at month 7 (well almost)! I'm still doing well generally - I had a call from my Nevro rep today asking me how things were going. She asked me what I thought my improvement % was and I said it must be 60-80% and in my right leg… Continue reading Month 7 – Pilates & Patriots
Well guys... what can I say.... hmmmm... not a lot has changed! I figured given that I have nothing much to say about my Spinal Cord Stim this month I figured I would talk a little more about what Ehlers Danlos means to me and the challenges it has presented over many moons. Just a… Continue reading Me & My Bendy Bod
I don't have a great deal to update you all on at the 6 month mark but I thought it might help to compare a weekend from a year ago to a weekend now. A year ago... Weekends would definitely include napping! I would probably wake up around 7am, my leg would be sore and… Continue reading 6 Month Anniversary!
Hi guys - just wanted to share a cheesy New Years post with you all! This year I think I have the capacity to make some real change this year so I'm setting myself some mini and not so mini goals. I'm not one for resolutions - but I've been lucky enough to have been… Continue reading Happy New Year!!
Sorry it's been a while since I updated you all but it's been so busy over this festive period. To sum it up I've done what I've wanted, I've danced, walked, sung and socialised without any consideration to my mobility, the consequences or the need to pace myself. I've lived as near a normal life,… Continue reading 6 months on (almost!) – 12 Days Of Christmas
Hellloooooo! Sorry it's been a while, I've not had a great deal to write about! I've been patiently working my way through the new settings on my stim since I went to the hospital almost two weeks ago. To be honest I've not been having a great deal of luck with them... I've had a… Continue reading 4.5 Months – Mini holiday! 🙂
Hi kids - just a quick update from me. I decided a week or two ago that it was time to see my Nevro rep and consultant again because my back pain was consistently around a 3/4 and my leg pain was creeping back in (after being non existent for months)! I decided to suck… Continue reading Month 4 – Reprogramming #1
Hi guys - I thought I would just check in with you all at the 4 months post op mark. I decided this week that it was time to go back and see my consultant. I've had fairly consistent back pain around a 3/4 most days for the last two weeks... then out of nowhere… Continue reading Month 4 – argh sciatica!!